Okay, deep breath. Mitchell is not doing bad, but he's not doing good. I guess that's what happens when you think you're out of the woods! So yesterday when I went in, his gases had not been good and they could no longer take away oxygen or nitric. They tried for over an hour to give him an IV and finally got one in his foot. (which only lasted a few hours) They called the cardiologist and asked him to come down and do an echo. Luckily I got to be there for everything. They found that he still has PPHN (where the systemic pressure = lung pressure) and the ductus arteriosis is still present as well. They decided to try a new route and are giving him Sildenafil (aka Viagra!!!) They are hoping this will help dilate the lungs letting the blood flow there and become oxygenated. Then they can take him off the Nitric oxide AND the ventilator as well.
They also had moved back his feedings from 25 to 20 cc because he keeps vomiting. That's why we're so excited to get him off the ventilator. He hates that tube down his throat, and because he's an older baby without being sedated it really bothers him, and make him gag all the time.
Last night Jake stayed home to let me introduce Hannah to Mitchell. He's so cute, I hope Hannah doesn't get too baby hungry... ha ha
Reesa and Jansen have been in heaven having thie cousin Emma around to play with. She is the happiest baby and so easy to get to smile!