Jansen and Reesa have both tried to adapt. Jansen wants to try baby Mitchell's binki everytime I turn around... He also wants to be held often, VERY unlike him. After his nap last week he sat in my lap for over an hour HOLDING my arms around him. I couldn't stop laughing.We decided to offer Whitney a summer job, and she had been our LIFESAVER!!! Seriously I don't know how we could do this without her. She is so good to help entertain Reesa and Jansen, watch Mitchell so I can shower, and keep me company. Reesa has started calling her "mommy Whitney," and is so happy when she's here.
Reesa insists that she is a baby. She tells me all the time she can't do this or that because she is a baby. I don't think I'll ever be able to give Mitchell a binki, they're always dirty!This baby is so precious. He seriously looks like he came out of a magazine... soon we will get a picture to do him justice. Until then, we'll just keep trying and posting these okay ones.
Here you can kind of see Mitchell's monitor he wears. We have 3 different oxygen sources to use when this monitor indicates.We've been doing TONS of sidewalk chalk (thanks Julie) Rylee actually colored this entire table, but Jansen loves to color it too.
So last night at dinner we look over to see Jansen clearing his plate by sharing his food with Mitchell. Who needs a dog?Life has been so crazy. People have been so kind to bring us meals when Jake works his 14 hour days. Whitney has been the biggest help. Mitchell isn't gaining weight like they want him to, so there's been a lot of "knee jerk" reactions. We pay $20 to have his weight checked every 2-3 days, and last time they decided we needed to move up our appointment (to the next day) with the Cartiologist to have his heart checked and make sure it's still working right. It's so stressful to go anywhere with all of Mitchell's gear. PLUS they've told us any illiness he gets will mean he needs to be hospitalized, so we're trying to be so careful. The pressures in his heart are great, but he has an abnormality in the way his aorta is formed. It is something that may be fine with time, or that could become a problem and needs surgery to repair in childhood or even as late as his teenage years. We'll go back when he's 6 months to re-eval.
Meanwhile I canceled his next weight check appointment. It's too much for me. When Jake's home I don't want to be spending the entire day at the doctors office. I need down time with him around! I'm a little nervous what the doctors will say to me, but I just can't keep up this crazy schecule. It's SO STRESSFUL, and I don't think that's good for Mitchell. I'm going back in 2 weeks??? and hopefully he'll have grown TONS!
Mitchell is eating well, and everyday I notice he's getting better at this, with less episodes where we need to give him oxygen. He sleeps 3 hours at night, and since we can't hear him cry (damage from the ventaltors) the monitor tells us when he's up. He's so sweet, and really does feel like a little angel in our home.
Jake's mom will be here Tuesday night, we're so excited to have her come! Things are just working out...